Like mother - like daughter

Today I went to see my lovely little girl - leaving my lovely little boy at home with his Grandparents. Gavin has so much fun with his Grandma - she is just the best! When I got to the hospital all seemed well - Bronwyn was going to be moved to another room. The room she was in yesterday was an intermediate room - a bit more monitoring etc. It is a segway between the NICU and a normal hospital room.

I was holding Bronwyn and she pulled out her feeding tube. She was so fast! I really couldn't be too upset since I had set a bad example for her yesterday. The nurse had to completely pull it out as it was too far out to rescue. Once she removed it Bronwyn smiled and looked a bit smug as she snuggled in and went back to sleep. So this afternoon they had to insert a new tube.

She was resting well when I went last night - she is doing well with her food so far.

I was informed this morning that we wont be returning to Calgary until Monday at the soonest. The Stollery is ready to send us but the Children's is in the middle of their move and they aren't ready to receive us. So we will wait here and continue to watch Bronwyn's progress.

I spent some time talking to the nurse practicioner for the Cardiac ward about what we can expect when we get Bronwyn home. Like everything else it is very dependent on how Bronwyn does and what she requires individually. I was able to at least construct a fairly realistic picture of what life will look like though. How difficult it will be is up to Bronwyn I guess. I have a better idea of the care aspect - what medications she will be on and what some of the key health issues will be. As for how she will be fed and how much activity she can endure that is all up in the air.

For now things are going well and that is all I need to know. I will set the worries about tomorrow aside so they can be dealt with tomorrow.