Bronwyn and I were at the hospital this morning. She is taking part in a study - a study that follows the development and growth of babies who have had intense and invasive therapies. The upside for us is that they are checking her hearing, motor skills and general health for a couple years.
Today she saw the hearing specialist, a physiotherapist and a pediatrician. All reports were great. She is right on target and is so far not showing any delays in development. This was really reassuring news. I suspected that she was doing good but you never know if this is just a mommy's perspective or if she really is doing the things she should.
It was a long appointment but I think it was worthwhile. Bronwyn has been in 3 or 4 studies up to this point. We are just so thankful for all the babies who have gone before Bronwyn and whose parents agreed to try risky and experimental surgeries. Without those children there wouldn't be a treatment for HLHS and Bronwyn wouldn't be here to participate in more studies. We are thrilled to participate in anything that will give them more information for the children that follow Bronwyn.
1 comment:
It's so great to hear that Bronwyn is doing so well and that she is able to participate in studies.
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